Society "Nameless" Trajectory of Sickness / Aya Ueno

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Society
[Introduction to the Contents]
How they deal with "unnamed" diseases and how they build their own lives.
The "unnamed" diseases and patients, such as rare and undiagnosed diseases, who are placed outside the scope of public support and security.
I hope this book will become a "hope" for people with many "difficulties in living", and it is the effort to describe the "life" process from the words of the parties concerned.
"I hope this book will lead to the power of many people who have not yet been diagnosed, and to reform the consciousness of medical professionals who are involved in it.
Roles of Diseases in Policies and the Intractable Diseases Law and the Triple Structure of" Ailment "
Chapter 4 : People Without" Words "to Express Suffering
1 Lack of Social and Academic Interests
2 Survey Overview
3 Analysis Methods
4 Comparison with" Cancer "
4-1 Mr. K" Yearning for Cancer "
4-2 Mr. T" A "Limited" Cancer "and" Fog "
7 Unified Medical Instructions and Migration -- Acquisition and Management of Patient Roles
6 Roles of Local Culture in the Choice of Migration --" Gift "for the" Growth of the Soul "
7 Hope due to the absence of the disease locus
Chapter 7 Relative and Reference of Experiences of Diseases --" Reference "to Experiences of Diseases --" Reference "to Experiences of Diseases --" Reference "to Experiences of Diseases --" Reference "to Experiences of Diseases --" Reference "to Experiences of Diseases --" Reference "2018, 『 New Sociology Research 』 3 : 166-189)," Current State of Public Support for Rare and Undiagnosed Diseases in Japan--Trends and Future Perspectives on Intractable Disease Policies and Laws for Intractable Diseases "(2019, 『 Collection of Social Studies of Health and Medical Care 』 30 (2) : 55-63)," Building Life in' Unnamed Diseases' -- From a Study on the Theory of Rare Undiagnosed Patients' Narratives and Trajectories of Diseases "(2021, Osaka University Graduate School of Human Science, 2020), etc. IRUD pacesetting Yaeyama Yaeyama Yaeyama Ueno Meiji University Rikkyo University Japan Society for the Promotion of Science measure to counter intractable disease